Nicole “Colie” Kohr is an American author, speaker, and advocate (@cystic4real). Through her non-profit organization, Colie Creations Inc, Nicole uses different storytelling platforms to advocate for patients and children. Her passion for storytelling stems from her childhood as a pediatric patient. Thanks to her mother's guidance and creativity, Colie learned that stories are powerful coping mechanisms. When her lung function declined to 11% due to a lifetime with cystic fibrosis (CF), Nicole underwent a bilateral lung transplant. After a lifetime of masking her disease, Nicole shared her story on social media. Her transparency and the publications that followed touched the lives of thousands. Present day, Nicole uses stories to bridge the gap between the chronically ill and able-bodied communities. An active foster parent, Nicole is spearheading an educational program for parents and children in the system. She is also the volunteer engagement chair of the Eastern/Central N.C. Chapter of the Cystic Fibrosis Foundation.
All [6] of Colie's children's books are available on Amazon.
Nicole is a chronically ill patient, a seasoned foster parent, and a hopeful adoptive parent.
Due to cystic fibrosis, Nicole "Colie" spent a lot of time in the hospital. Her favorite coping mechanism was storytelling. She loved to read stories with her mother. Child Life Specialists would help her tell stories through puppets. As she aged, she became an active member at her local community theater. She began to write stories, lyrics, and even plays. Later on, Nicole learned that storytelling is also a crucial part of advocacy, and she wanted to share this gift with the world.
You can book Nicole for virtual author visits, custom videos, and more. Email info@coliecreations.org to inquire.
Colie's books are available on Amazon. If you're interested in an autographed copy, email info@coliecreations.org. "Fall Risk The Musical" is available wherever music is streamed.
Annual Fund donations support Colie's creations and gifts toward beneficiaries, such as patients & foster children.
"Fall Risk The Musical" was created by and for the cystic fibrosis community. Double click to learn more.
Stories improve literacy, but universities such as Harvard and Yale found even more benefits.
provide many health benefits.
increase oxytocin & lower cortisol.
may lengthen lifespan.
trigger physiological responses.