Lung Scrappy Hungry Archives -

‘Astonishing’ Acts of Feminism Throughout My Journey with Cystic Fibrosis

July 28, 2022July 17, 2024 NicoleLung Scrappy HungryTagged astonishing, Column, diagnosis, female, feminism, gender, girl, grandma, label, little women, mom, mother, opinions, parent, patience, society, strength, tolerance

As a CF patient and stage performer, columnist Nicole Kohr has developed a unique view of what femin...

How I Turned My Cystic Fibrosis Advocacy Into Part Of My Career

June 23, 2022July 18, 2024 NicoleLung Scrappy HungryTagged advocacy, advocate, career, Column, creative, shakespeare, Something Rotten, story, storytelling, work, write, writing

Originally posted on Cystic Fibrosis News Today. “Something Rotten!” is one of my favorite Broad...

I Must Use My Energy Wisely, But Use It I Can

June 16, 2022July 18, 2024 NicoleLung Scrappy HungryTagged anxiety, Column, diabetes, Fatigue, Once Upon A Mattress, rest, self care, sleep

Originally posted on Cystic Fibrosis News Today. When my body feels like it’s running on fumes and...

‘My Shot’: What is Means To Be A Survivor

June 9, 2022July 18, 2024 NicoleLung Scrappy HungryTagged CF Life Expectancy, Column, Guilt, hamilton, live, My Shot, pride, survival, survive, survivor, trauma

Originally posted by Cystic Fibrosis News Today. My family and I were finally able to see the Broadw...

‘Dust and Ashes’: Feeling Like a Burden Kept Me From Being Transparent

May 26, 2022July 18, 2024 NicoleLung Scrappy HungryTagged 1812, burden, Column, comet, communication, emotion, endurance, faint, label, natasha, pierre, pseudomonas, resentment, tolerant, transparency, transplant

Originally posted on Cystic Fibrosis News Today My biggest fear as a child was being a burden to f...

‘Watch What Happens’: The Importance of Writing

May 19, 2022July 18, 2024 NicoleLung Scrappy HungryTagged advocacy, article, Column, coping, edit, inclusion, journal, newsies, story, storytelling, theater, transparency, write, writing

Originally posted on Cystic Fibrosis News Today The Broadway musical “Newsies” chronicles the tr...

‘When I Grow Up’: Aging With CF is a Gift

May 12, 2022July 18, 2024 NicoleLung Scrappy HungryTagged age, aging, Column, empathy, gift, growing, longevity, Matilda, support, transplant, treatments

Originally posted on CFNewsToday. The song “When I Grow Up” helps open the second act of “Mati...

‘Welcome to the Renaissance’: A New Beginning for CF Patients

May 5, 2022July 18, 2024 NicoleLung Scrappy HungryTagged CF Community, CF Life Expectancy, Column, covid-19 pandemic, Something Rotten, trikafta

originally posted on cystic fibrosis news today “Welcome to the Renaissance” is the opening numb...

‘The Next Right Thing’: Overcoming Burnout

April 28, 2022July 18, 2024 NicoleLung Scrappy HungryTagged advocacy, Column, covid-19 pandemic, exercise, family, Frozen, nebulizer, self-care management, stress, support, vest, writing

Originally posted on CFNewsToday. Burnout. Everyone knows the feeling, especially patients and their...

The Importance of Support Systems When Managing Chronic Illness

April 21, 2022July 18, 2024 NicoleLung Scrappy HungryTagged care team, Column, community support, diana, encouragement, network, princess diana, resilience, support

I recently discovered “Diana: The Musical,” which follows Princess Diana and Prince Charles thro...