The Many Colors of Cystic Fibrosis: Orange (Part 2) May 25, 2023July 28, 2023 NicoleUncategorizedTagged Column, orange, rehab, smell, sports, tigger Originally posted on cystic-fibrosis.com. Let’s get back into cystic fibrosis (CF) and the col...
The Many Colors of Cystic Fibrosis: Orange (Part 1) April 5, 2023April 5, 2023 NicoleUncategorizedTagged caution, Column, costume, halloween, Joseph, medication, medicine, pill, port, sweat Originally posted on cystic-fibrosis.com I love viewing my journey with cystic fibrosis (CF) through...
Onlooker Play: Why Parents Need To Read “Rooker The Looker” April 4, 2023April 5, 2023 NicoleUncategorizedTagged child life, onlooking, play therapy, Rooker the looker 4.4.23 While I’ve always been an empath, exhausted and overwhelmed by crowds, lets save the “int...
‘One Last Time’: Saying farewell to my column March 27, 2023April 4, 2023 NicoleUncategorizedTagged Column, farewell, final, hamilton, one last time Columnist Nicole Kohr thanks her cystic fibrosis community for their support “One Last Time” fro...
‘Freak Flag’: Rare Disease Day February 28, 2023February 28, 2023 NicoleUncategorizedTagged Column, freak flag, rare, rare disease day Two things come to mind when I think about Rare Disease Day: community and “Freak Flag” from “...
The Many Colors of Cystic Fibrosis: Grey (Pt 1) February 9, 2023February 11, 2023 NicoleUncategorizedTagged aging, birthday, color, Column, grey, parenting, SSD Originally posted on Cystic-Fibrosis.com My journey with cystic fibrosis (CF) has been very colorful...
Living With Cystic Fibrosis Means I’m Bad At Sticking To a Routine January 26, 2023February 2, 2023 NicoleUncategorizedTagged Column, routine, tangled Originally posted on cystic fibrosis news today I don’t find routine to be rewarding. At most, it...
Why I Wish Mask Mandates Were Still In Place January 12, 2023February 2, 2023 NicoleUncategorizedTagged cautious, Column, disenchanted, infection, mask, mask mandate, protection, wish Originally posted on cystic fibrosis news today. One of Disney’s latest creations is “Disenchant...
How My Fight For Antibiotics Reminds Me of ‘Titanic’: Part 3 December 29, 2022January 5, 2023 NicoleUncategorizedTagged advocacy, AMR, antibiotics, Column, medication, pasteur act, pipeline, resistance, titanic Originally posted on Cystic Fibrosis News Today Last in a series. Read parts one and ...
The Many Colors of Cystic Fibrosis: Black (Part 2) December 14, 2022December 14, 2022 NicoleUncategorized Originally posted on cystic-fibrosis.com In my last article, I discussed the impact of the color bla...