Healthcare and Fashion: Send In The Gowns September 2, 2021May 8, 2022 NicoleUncategorizedTagged accessibility, accessible, Broadway, clothing, Column, fashion, gown, hair, healthcare, Hospital, inpatient, Little Night Music, outpatient, shoe Originally published on Cystic Fibrosis News Today. If you plan on dressing like a doctor or a nurse...
Colie in the Bathroom August 26, 2021May 8, 2022 NicoleUncategorizedTagged acceptance, accommodations, bathroom, beach, Column, faint, hair loss, hide, high calorie diet, Hospital, nebulizer, relax, rest Originally published on Cystic Fibrosis News Today. I assume the bathroom is a sterile, uncomfortabl...
You Learn (About Cystic Fibrosis) August 19, 2021May 8, 2022 NicoleUncategorizedTagged advocacy, advocate, awareness, Column, communication, emotions, Fall Risk, history, learn, learning, logistics, teach Originally posted on Cystic Fibrosis News Today. “Fall Risk” is a new musical comedy about cysti...
‘And I Am Telling You I’m Not Going’ (to the Clinic) August 12, 2021May 8, 2022 NicoleUncategorizedTagged advice, anxiety, appointment, clinic, Column, communication, doctor, Dream Girls, expectations, Guilt, medication, Patient, PFT, pulmonary function test, support system, tips, transparent Originally posted on Cystic Fibrosis News Today. Clinic anxiety is real, especially if you’re fr...
The Many Colors of Cystic Fibrosis: Blue August 6, 2021May 8, 2022 NicoleUncategorizedTagged awareness, blue, Column, Dream Coat, Joseph, oxygen, ribbon Originally posted on Cystic-Fibrosis.com https://cystic-fibrosis.com/living/blue Joseph and the Tech...
‘Me Ol’ Shampoo’: How My Health Has Affected My Hair August 5, 2021May 8, 2022 NicoleUncategorizedTagged aesthetic, Chitty Chitty Bang Bang, color, Column, conditioner, Gastroparesis, hair, hair care, hair loss, medication, moana, shampoo, transplant, treatment Originally posted on Cystic Fibrosis News Today. Hair has always been a huge part of my identity. So...
We’re filing the paperwork to become a 501(c)(3) organization! July 30, 2021February 15, 2022 NicoleUncategorized Stay tuned for updates!...
Dancing the ‘Tango: Chlorine’ July 29, 2021May 8, 2022 NicoleUncategorizedTagged bottled, cellcept, Column, dehydration, fluid, foreign bodies, hydrate, hydration, immune system, immunosuppressed, lung, medication, POTS, rejection, rent, tacrolimus, transplant, virus Originally posted on Cystic Fibrosis News Today. If I were a superhero, my Achilles’ heel would be...
The Sun’ll Come Out – In 2 Weeks? July 22, 2021May 8, 2022 NicoleUncategorizedTagged admission, annie, antibiotics, Column, Hospital, isolation, IV treatment, stay, sun, treatment, tune up, tuneup, two, weeks Originally posted on Cystic Fibrosis News Today. Most cystic fibrosis (CF) patients are admitted to ...
Making Friends With Latex Predators July 15, 2021May 8, 2022 NicoleUncategorizedTagged advocate, Column, diagnosis, doctor, doctors, latex, Mean Girls, New Jersey, North Carolina, pediatric, pediatrician, pulmonologist, team Originally posted on Cystic Fibrosis News Today. A funny female pediatrician named Dr. C diagnosed�...