Telling Healthy Colleagues About My Terminal Illness September 1, 2022September 8, 2022 NicoleUncategorizedTagged beetlejuice, Column, communication, diagnosis, diclose, disclosing, healthy, humor, illness, loss, reaction, response, terminal, therapy, transparency Originally posted on cystic fibrosis news today. I wanted to discuss my relationship with “my expi...
How My Priorities Change When My Lungs Hold Me Hostage August 25, 2022August 30, 2022 NicoleUncategorizedTagged antibiotics, Column, decline, organs, out of control, priorities, transplant Originally posted on Cystic Fibrosis News Today The musical “Bonnie & Clyde” follows the inf...
The Importance of Frivolity on My Journey With CF August 11, 2022August 30, 2022 NicoleUncategorizedTagged Column, comfort, coping, frivolity, Frozen, Hospital, hygge, mental health, trauma Originally posted on Cystic Fibrosis News Today My journey with cystic fibrosis (CF) has been some...
‘You Two’: The Therapeutic Power of Pets for CF Patients July 21, 2022July 18, 2024 NicoleUncategorizedTagged adopt, allergy, Column, dog, pet, therapeutic, therapy Originally posted on Cystic Fibrosis News Today. The song “You Two” from “Chitty Chitty Bang B...
Why I Developed a Fear of Airplanes as an Adult With CF July 14, 2022July 18, 2024 NicoleUncategorized Originally posted on Cystic Fibrosis News Today As a cystic fibrosis (CF) patient and advocate, I...
Finding Your Identity in Matters of Life and Death July 7, 2022July 18, 2024 NicoleUncategorizedTagged Broadway, Column, hamilton, identity, prognosis, support, transplant, trauma Originally posted on Cystic Fibrosis News Today I’m thankful to be alive. I was supposed to leave ...
Let’s Maintain Hope, Even When History Repeats Itself June 30, 2022July 18, 2024 NicoleUncategorizedTagged america, Column, connection, covid-19 pandemic, future, generation, hairspray, history, hope, newsies, treatment, west side story Originally posted on CF News Today I recently watched the 2021 remake of “West Side Story.” It w...
The Many Colors of Cystic Fibrosis: Yellow (Part 1) June 22, 2022December 5, 2022 NicoleUncategorizedTagged caution, color, colors, Column, Dream Coat, fall, Fall Risk, Joseph, skin, urine, yellow Originally posted on Cystic-Fibrosis.com https://cystic-fibrosis.com/living/yellow When I was a chil...
The Many Colors of Cystic Fibrosis: Purple (Part 2) May 25, 2022June 1, 2022 NicoleUncategorizedTagged adhd, caregiver, Column, Dream Coat, Hospital, Joseph, neurodivergent, purple Originally posted on Cystic-Fibrosis.com https://cystic-fibrosis.com/living/purple-cf In my previou...
The Many Colors of Cystic Fibrosis: Purple (Part 1) May 20, 2022June 1, 2022 NicoleUncategorizedTagged awareness, Column, Cystic Fibrosis Foundation, Dream Coat, Great Strides, Joseph, Pancreas, purple https://cystic-fibrosis.com/living/cf-purple May is cystic fibrosis awareness month, which is repres...