Uncategorized Archives - Page 4 of 12 -

‘I Believe’: Blind Faith vs. Blind Trust

April 7, 2022May 18, 2022 NicoleUncategorizedTagged Book of Mormon, cf cure, CF Foundation, Column, coping strategies, doctors, faith, PFT, pulmonary function test, transplant, trust

Originally posted on Cystic Fibrosis News Today I’ve written about coping mechanisms bef...

‘Schadenfreude’: Experiencing Pain and Solidarity

March 31, 2022May 3, 2022 NicoleUncategorizedTagged Avenue Q, Broadway, Column, community, covid-19 pandemic, empathy, face mask, Guilt, kidney, kidneys, Pain, pain management, Schadenfreude, showing solidarity

Originally posted on Cystic Fibrosis News Today I became aware of the word schadenfreude during my f...

The Many Colors of Cystic Fibrosis: Brown (Part 2)

March 30, 2022May 8, 2022 NicoleUncategorizedTagged blog, brown, color, Column, cystic fibrosis, Diet, Dietician, Dream Coat, Dumping, enzymes, Gastroparesis, GI, Joseph, Malnutirion, Nutrition, Pancreas, Poop, stomach, Weight

Originally posted on cystic-fibrosis.com https://cystic-fibrosis.com/living/stories-brown In my prev...

The Many Colors of Cystic Fibrosis: Brown (Part 1)

March 25, 2022May 8, 2022 NicoleUncategorizedTagged brown, color, Column, cystic fibrosis, Digestive, Dream Coat, Dumping, GI, Joseph, Pancreas, Poop, stomach

Originally posted on Cystic-Fibrosis.com https://cystic-fibrosis.com/living/stories-cf-brown If you ...

Celebrating ‘Company’: Visitors at the Hospital

March 24, 2022May 18, 2022 NicoleUncategorizedTagged Column, Company, Energy, family, friends, Guests, Hospital, hospitalizations, IV treatment, Patient, Sondheim, support, Visitors

original post on Cystic Fibrosis News Today “Phone rings./ Door chimes./ In comes company.” — ...

‘Big Fun’: My Make-A-Wish

March 17, 2022May 3, 2022 NicoleUncategorizedTagged big fun, birthday, Broadway, Column, Cystic Fibrosis Foundation, dreams, heathers, make a wish, normalcy, party, teen, teenager

Originally posted on cysticfibrosisnewstoday.com Make-A-Wish is an organization that offers gift ex...

Art Night

March 16, 2022April 5, 2022 NicoleUncategorizedTagged art, art night, event, jeans, kids, My Pants, paint, pants, school

ART NIGHT at Oak Road Academy! Event link below. Thank you to SCBWI and their Book Launch Grant for ...

We’re a 501(c)3!

March 11, 2022April 5, 2022 NicoleUncategorizedTagged 501c3, donate, donation, donations, IRS, non profit, nonprofit, organization

It’s official! We received our letter from the IRS, and we are officially a 501(c)3 nonprofit ...

‘You’re Wonderful’: How Society Labels CF Patients

March 5, 2022May 18, 2022 NicoleUncategorizedTagged cf advocate, CF Community, Column, community, label, social media, stories, transparency, Wicked

Originally posted on Cystic Fibrosis News Today “Is one a crusader or ruthless invader?/ It�...