“Lung, Scrappy, and Hungry” is a column written by Nicole Kohr, originally posted on CysticFibrosisNewsToday, and bridges the gap between Cystic Fibrosis (CF) and musical theatre.
Articles
One Last Time: My Farewell Article
Living with Cystic Fibrosis Means I’m Bad at Sticking to a Routine
Why I Wish Mask Mandates were Still in Place
How My Fight For Antibiotics Reminds Me of ‘Titanic’: Part 3
How My Fight For Antibiotics Reminds Me of ‘Titanic’: Part 2
How My Fight For Antibiotics Reminds Me of ‘Titanic’: Part 1
Weighing My Desire to get a Tattoo Against the Potential Risks
The Difficulties of Diving Back in After Taking a Hiatus
Telling Healthy Colleagues About My Terminal Illness
How My Priorities Change When My Lungs Hold Me Hostage
The Importance of Frivolity on my Journey with CF
‘Astonishing’ Acts of Feminism Throughout my Journey with CF
‘You Two’: The Therapeutic Power of Pets for CF Patients
Why I Developed a Fear of Airplanes as an Adult With CF
Finding Your Identity in Matters of Life and Death
Let’s Maintain Hope, Even When History Repeats Itself
How I Turned My Cystic Fibrosis Advocacy Into Part of My Career
I Must Use My Energy Wisely, but Use It I Can
‘My Shot’: What It Means to be a Survivor
‘Dust and Ashes’: Feeling Like a Burden Kept Me From Being Transparent
‘Watch What Happens’: The Importance of Writing
‘When I Grow Up’: Aging With CF is a Gift
‘Welcome to the Renaissance’: A New Beginning for CF Patients
‘The Next Right Thing’: Overcoming Burnout
The Importance of Support Systems When Managing Chronic Illness
‘Everybody Fits’: How Neurodivergence Affected My CF Journey
‘I Believe’: Blind Faith vs. Blind Trust
‘Schadenfreude’: Experiencing Pain and Solidarity
Celebrating ‘Company’: Visitors at the Hospital
‘You’re Wonderful’: How Society Labels CF Patients
‘Strangers Like Me’: An Open Letter to The CF Community
‘Her Voice’: How Cystic Fibrosis Affects Vocals
‘How Far I’ll Go’: Proving My Rare Disease Doesn’t Define Me
‘Mucus of the Night’: Dealing with CF-Related Sleep Issues
A Spoonful of Sugar: My Diabetes Diagnosis, Part 2
A Spoonful of Sugar: My Diabetes Diagnosis, Part 1
New Year’s Resolutions for the Chronically Ill
How Chronic Illness Affected My Education
‘Be Our Guest’: Canceling Get-togethers Due to Chronic Illness
‘Grow Old With You’: Lasting Relationships With Chronic Illness
Finding Peace With My New Body Mean Accepting Change
Is Being Transparent About Chronic Illness Inappropriate?
‘Blow, Nicole, Blow’: My Journey With PFTs
‘It’s Not Over Yet’: What It Means to be Chronically Ill
‘Look at Me, I’m Atrophy’: Being Chronically Ill at Halloween
‘The Nicest Kids in Town’: My Complex Relationship With Medical Residents
I Want to do More than Survive in Life After Transplant
‘Changing My Major (Organs)’: A Chronicle of Bilateral Lung Transplant
‘Disappear’: On Being Absent From Your Own Life
‘One Day More’ (Until Discharge)
Healthcare and Fashion: Send in the Gowns
You Learn (About Cystic Fibrosis)
‘And I am Telling You I’m Not Going’ (to the Clinic)
‘Me Ol’ Shampoo’: How My Health Has Affected My Hair
The Sun’ll Come Out – In 2 Weeks?
Making Friends with Latex Predators
Learning to Embrace My Poor Unfortunate Holes
Welcome to ‘Lung, Scrappy, and Hungry,’ a column about my CF journey